Posted by: Andy | December 24, 2009

What I’ll Miss Most This Christmas

What I’ll miss most this Christmas:

  • Having you take my picture in front of the tree or the fireplace with the family - or hanging my stocking. An annual tradition!
  • Helping you pick out the biggest, fattest REAL Christmas tree we could find.
  • Putting my shoes outside of my bedroom door for Santa to fill – then waiting patiently in the middle of the night to hear the distinct sound of a present being placed in them. And yes, I knew it was you.
  • Quietly placing my ear to the door to hear you downstairs trying to put together “Requires Assembly” items.
  • Trying to wake you and mom up so we could go downstairs - then once downstairs hearing you say “Santa was here!”
  • Having you come in my room to tell me that they spotted Santa on the radar. I totally bought it.
  • The Atari, Intellivision and the amazing Casio keyboard. Still the best gifts ever.
  • Also that car thing you gave us that you had to push. All the other kids had Big Wheels and Cheetahs. We had that car thing.
  • Helping you hang the Christmas lights on the outside of the house. Somehow you got every string to work year after year.
  • John Denver’s Rocky Mountain Christmas.
  • Classical Christmas music softly played through your stereo on Christmas Eve. I still listen to it every year.
  • Your practical gifts - extension cords, light bulbs, flashlights, batteries, CDs, DVDs - their usefulness outlasting any other present.
  • Your quiet contentment in watching everyone else have fun on Christmas morning.
  • Waiting for you to light the Kerosene heater so we wouldn’t freeze in the addition – and of course the smell!
  • Your photographic and computer skills. Everyone had a CD full of pictures, a DVD video and color prints to take home less than 1 hour after opening gifts.
  • Shopping for that one electronic gadget, gizmo, tool or flashlight that you didn’t already have. It didn’t exist.
  • Also shopping for that one brain-teaser or puzzle that you couldn’t solve. Didn’t exist either.
  • The call to Argentina on Christmas day. Even though I didn’t speak Spanish you would always make me talk to the relatives – and I’m glad I did.
  • Mom always getting you clothes – in the wrong size.
  • The velour shirts you loved.
  • The secret missions you sent us on to retrieve that big surprise present from the car or van.
  • Your complaints about how spoiled we were as kids after getting too many gifts. We were. Thank you for that.
  • Your standard response to the question “Dad, what do you want for Christmas this year?”  – Peace. I never understood why you said that. I do now.
  • You giving us the ways and means to always have Christmas together as a family.

Most of all dad, the thing I’ll miss the most this Christmas is you. It just won’t be the same. Merry Christmas!

Posted by: Andy | April 15, 2009

A Masterful Sign

This past weekend a virtual unknown golfer won the Masters Tournament – the most surprising champion in its history…

He shot 276 over 4 days in regulation – for an average score of 69
The modern Masters Tournament started in 1940 – 69 years ago
The winner was born on Sep. 12, 1969
He was the lowest ranked golfer ever to win the Masters – his world rank: 69
He was from Argentina – the first Argentine ever to win the Masters
He was from Cordoba

Dad was from Cordoba, Argentina. He would have been 69 years old.

Oh – the golfers name? Angel

We miss you dad!

Posted by: Barbara | March 26, 2009

Our Hero

It is very difficult to find the words to express our gratitude to everyone who supported our family during this difficult time. I was finally able to read the blog recently and was so comforted by all the wonderful reflections about the life of my husband, Mario. We knew him in a different light….as a husband, father and grandfather. Mario was a very humble man and seldom spoke of his accomplishments. We only knew that he received many awards, which usually ended up somewhere in his stacks of papers. He appreciated every award but was not one to boast or hang them up for others to see. I attended some professional meetings with him and heard many accolades about his contributions. The family traveled to quite a few launches at the Cape and witnessed  the fruits of his labor.

Mario loved what he did….it wasn’t a “job” but an “adventure”. He would come home from work, eat dinner and retire to his back room where he continued on with this “adventure”. Our family learned a lot about Mario that we weren’t aware of through your reflections on the blog and your wonderful cards.

We will miss him dearly. He was our godfather and the cement that held our family together. He always had time to fix whatever needed repair, to give advice and was always there whenever we needed him for anything. The best gift of all was the college education that he gave to each of his children. He felt very strongly about education and had set up funds to help educate the grandchildren.

I always wanted to retire to Ocean Pines where we had a beach house. But, in the back of my mind, I knew that Mario would never leave Goddard and his career that he loved. However, we were able to spend  many wonderful family weekends there.   Mario designed and loved this house and relaxed and enjoyed himself whenever he was there. One of his favorite things to do was to fill the bird feeders and watch the birds through his binoculars.

The family is trying to get on with their lives…..Mario would have wanted it that way. To all his friends, c0-workers and family I cannot adequately express my feelings, except to say that our family will be forever grateful to each and every one of you for your support, kind words and generosity. Mario will always be our hero and remain forever in our hearts. God bless you ALL……

Posted by: Andy | March 23, 2009

Acuna Family Thanks

Hello Friends & Family,

We want to use this blog to thank all of you for showing such amazing support and love towards our family as we deal with the loss of my father. It truly makes a difference. We have thoroughly enjoyed reading all of your cards/emails, Mario stories on the blog and appreciate the ‘check-in’ phone calls. And we have probably gained 5 lbs each from the delicious meals sent to us. The support is truly appreciated and we thank each of you for reaching out and being there for us.

Everyone says the hard part is still ahead of us as we try to get back to somewhat of a routine in daily life and they are right. Barbara is busy with lots of paperwork and getting the house organized (you should see my Dad’s back room and he saved EVERYTHING!) Andy, James, Marta & Dan have started work again and the grandkids are back to school so that is keeping us all busy. So there is plenty to keep us moving forward but I have to admit we all miss my father dearly and intend on keeping his spirit alive. There is not an hour that passes that we don’t think about him and I hope that never changes.

As a family we plan on having yearly event(s) to raise money for his scholarship fund at Catholic University and stay connected with all of you through this blog. We would like to stay in touch with his co-workers at NASA monitoring the progess of the missions for which he was in the process of building instruments. We plan on going to the JUNO launch in 2011 to honor his contributions to the mission and make sure the grandkids get to experience what we did growing up. There’s nothing like a NASA rocket launch to a 5 year old – that is something you never forget!

We have also kept in touch with our Argentine relatives thanks to SKYPE techonology where we can actually talk face to face over the internet (amazing technology) seeing our many cousins, their children, uncle, aunts, etc.. Dad would be so proud that the Argentine connection remains in tact since he was the primary link in the past. They sent us a great article that was published in the national Argentine paper ‘La Nacion’:

http://www.lanacion.com.ar/nota.asp?nota_id=1107169

Also another article was featured in the Washington Post about his life:

http://www.washingtonpost.com/wp-dyn/content/article/2009/03/14/AR2009031401703.html

This past Saturday, March 21st was my father’s 69th birthday so say a little prayer to him so we all keep his memory and spirit alive.

Thanks again for everything.

Warmest Regards,
Marta & The Acuña Family

Posted by: Andy | March 12, 2009

Remembrance, from your son Andrew

On behalf of the entire Acuña family, we would like to thank each and every person who has supported us through this trying time. Through your encouragement and prayers we are buoyed to remain strong in the face of an overwhelming challenge. We are truly humbled by your continual display of love, compassion and kindness.

If you look up at the sky at night as my father Mario often did, sometimes you’ll notice stars that aren’t like the others. In a universe full of trillions of stars, some just shine brighter than the rest. They seem to glow – to shimmer – to pull in light from all around them. The largest and brightest of these stars actually die before all of the others – they just burn too fast for the universe to hold them.  In the end they sacrifice all the parts that made them whole so that other stars can be born from their passing.   

My father’s star certainly burned fast and shone bright – a steadfast and tireless worker in every regard, never failing to give his entire measure of devotion to every pursuit. He exemplified what it means to be a husband, father, abuelo, colleague, mentor, friend and hero.  He personified class, integrity, ethicism – with a rare and quiet pride for the myriad contributions he made to humanity itself. His love for science and discovery was surpassed only by the love for his family – and surpassed by a mile. My father used to travel a lot for work, sometimes being gone for weeks at a time. As kids we used to joke that he must have another family somewhere. Throughout his illness we found out he indeed did – and that family is all of you.  Forever willing to help those in need, my father’s selflessness endeared him to countless people – always the repairman, the teacher, the sage, the strong-shouldered hulk to stand on.

How does one give appropriate thanks to the person that gave you life – in every sense of the word? How do you repay such generosity and unconditional love and support? If you had asked me 6 years ago I might not have known the answer – but unknown to me at the time it lie inside of me, hidden and waiting, instilled in me by the man who taught me most everything I know. When my son Nathan was born the question was all at once answered – as natural to me as breathing. My father never wanted to be thanked or repaid. What he wanted from me – and from everyone – was to quietly lead by example as he did – to sacrifice as those that came before him did so that others may get their rightful chance to be great.

What my father never spoke of but in retrospect clearly communicated was a roadmap for raising my children and for appreciating and respecting the honor of having a family to love. The life lessons he imparted should serve as an example to us all. My father’s most important legacy is the education he provided for his children and grandchildren. In the book of Proverbs there is a passage that reads, “a good man leaves an inheritance to his children’s children”. A couple of years ago, in his own quiet and unassuming way as always, my father mentioned to me he had set up a college fund for the grandkids so that they too could experience the value that an education brings – how it pays itself forward forever. What our dad ultimately did for all of us is his greatest gift. It was not providing us the answer to every question – it was giving us the ability to answer those questions ourselves. He taught us that the most important gift you can give someone is to teach them how to learn.

What better homage to pay to my father than to challenge oneself to carry his message forward, to show others that morality, benevolence and respect for your fellow man are not obtuse concepts? He asked a lot of himself and in turn hopes we might ask ourselves the same – not for recognitions sake – but for the simple reason that lending yourself to others in need is always the right thing to do. He will live on through each and every one of us. Do not take that responsibility lightly.

I remember as a child in the summer of 1977 my dad took the family down to Cocoa Beach, Florida for the launch of the Voyager 1 spacecraft for which he helped build the magnetometers. We all watched out over the ocean as the rocket lifted off and began its journey into space. In a sense, we were watching a metaphor for my father’s life and passing – a brilliant and powerful symbol of hard work, dedication, pioneering and imagination ascending into the heavens, quickly leaving our sight but still ever present in our minds and hearts – continuing on its journey silent and unseen, its voyage of discovery shared with all, its influence on the space that it held, the space that it passes, powerfully felt – continuing on, forever.

I ask that you not mourn my father’s passing, but instead celebrate the life that he led. As stoic and serious as he sometimes appeared, within him there lived an inner child that never stopped laughing, playing, looking up at the stars and wondering. He loved to have fun and to experience life. Right now I’m sure he’s showing God his world famous detachable thumb trick or maybe taking in a game of cards, dancing a tango or holding those around him spellbound with enthralling tales of planetary magnetism and space plasmas.

As a scientist, my father’s main job has always been to question, to deal with the empirical – but what should give us all comfort is that which was never in question – his faith in God. He quietly served the Lord and showed us His ways and for that we became closer as a family even in death. We are truly grateful that we could share in his final days together. What an incredible gift given to us by God that our father passed on in comfort and surrounded by those he loved.

He faced his illness and death as he lived his life – a man of strength, integrity, unfailing determination, a fighter to the end; with such an appreciation for the life he was afforded. He told us not to be sad for him and to go on living our lives as he had prepared us to do. “I’ve had my time”, he said. “I’ve done everything I wanted to do. Now it’s your time”.  In his final days when he had lost his capacity for speech and was unresponsive my sister and I were holding vigil over him when he suddenly opened his eyes and raised both hands for us to hold. Struggling to talk he managed the word “frame”.  “You want a frame dad?” I asked. “You mean a picture?” He shook his head yes. “A picture of what?” I inquired.  Pausing to gather the strength he would need to utter the last word he would ever speak on this Earth he turned to me and said, “Family”. A more appropriate last word has never been spoken.

May God bless and keep you dad. We love you.

Posted by: Andy | March 5, 2009

A Brilliant Light Extinguished

Early this morning our beloved father passed away, in comfort and surrounded by his loving family. He will be dearly missed. We love you dad!

Arrangements

Visitation
Date: Monday, March 9
Times: 2 – 4 PM, 6 – 9 PM (Memorial Tribute at 8 PM)
Place: Robert E. Evans Funeral Home
16000 Annapolis Rd., Bowie, MD
Phone: 301-464-8836

A Memorial Tribute will be held during the visitation at 8PM at which you can share your thoughts and memories of Mario.

Funeral Mass
Date: Tuesday, March 10
Time: 11 AM
Place: Sacred Heart Catholic Church
16501 Annapolis Rd, Bowie, MD
Phone: 301-262-0704

Repast to be held in Carroll Hall following mass.

Interment
Private

In Lieu of Flowers

Mario H. Acuña Memorial Fund

Contributions may be sent to the Mario H. Acuña Memorial Fund at The Catholic University of America:

The Catholic University of America
620 Michigan Avenue, NE
Aquinas Hall, Room 106
Washington, DC  20064

(Checks should be made payable to The Catholic University of America and should reference the Acuña Fund on the memo line)

Multiple Myeloma Research Foundation

Multiple Myeloma Research Foundation
383 Main Avenue, 5th floor
Norwalk, CT 06851

(Checks should be made payable to “MMRF”)

Posted by: Dan | March 4, 2009

To A Great Man, From Your Son

As I sit here and watch my father disappear before my very eyes, my heart feels a pain like none I have ever felt before, for my Dad, my hero, is slowly fading away, leaving only a shell of the great man I once knew. I try not to cry, I try to be strong, but that is a futile task, for the love I have for my father is too great to be constrained by pain and sorrow. The tears must flow and the anger must come against this terrible cancer that is taking his life. I really cannot stand to see him this way. It just breaks my heart to see such a great man coming to such a tragic end.

My dad truly was a great man and I will always remember him that way. I will always remember him as a teacher, a friend, an educator, a confidant, a repairman :) , and an amazing parent. He stressed in me from an early age, the value of education, but at the same time, to take time for friends and family, and just to have fun. He knew we all needed a little bit of both to succeed in this world and he definitely led by example. He loved his job at NASA and had a never-ending thirst for knowledge and truth. But, at the same time, he made sure we were all loved and taken care of. He made sure to challenge us to think; about the world, about politics, about science, about anything really. As long as we were thinking and pushing ourselves forward, I believe my Dad was happy.

Personally, he pushed me to be better than I thought I could be. He pushed me to get good grades all throughout my life, get into a good college and then start a good life for my family and myself. He used to tell me to choose a career I could see myself doing for the next 30 years, and to this day, that is something I ask myself every day (what would Dad do). What choice would he make in this situation? Now, I may have disappointed him from time to time, and of course we had our disagreements, but I hope he knew that I tried my best to find my place in this world and to represent him and the last name he gave me to the best of my ability. I hope he was proud of me. I hope he was proud of the life I have built for myself thus far.

Very few people get to live the life they dream of, but my father lived his dream every day of his life. He chased his dreams all the way from Argentina to the U.S., and in the process, created an unbelievable life for not only himself, but also for those he loved.

I hope to be exactly like my father and to earn the respect and love I have seen that EVERYONE has for him.

Dad, I will miss you terribly, but I take solace in the fact that you will be with God and feel no more pain or sorrow. You will be at peace.

I know we will see each other again, of this I am sure. So, as they say in Argentina, “Hasta Pronto” (“See you soon”).

Love, Always,

Your son,
Dan

P.S. Do not worry about Emily or the new baby, they will be fine. I will make sure they are brought up in the Mario way. I know you will look down on them and protect them, always.

Posted by: Andy | March 3, 2009

The Ultimate Sacrifice

While I sit in the cold and chilly air and recall famous or not so famous stories of those people who sacrificed everything for some greater good, such as a cop killed in the line of duty, a firefighter battling some blaze, or a soldier killed on some distant battlefield, I am reminded that other people also have given the Ultimate Sacrifice.   My father, as he sleeps and the fight for his life concludes, is my hero who will give the ultimate sacrifice.   It is he who has sacrificed for his countries (yes there are two), his profession, and most importantly his family.   While others wished to be recognized with awards or money, my father being that simple person, only wished that to provide support for his family.   He never asked for praise for his accomplishments or acknowledgment for this support.  

No one could imagine some 46 years ago, when my father came to this country, that my father would sacrifice his own well being for his wife and four children and 5 plus grandchildren.  It is his relentless pursuit of science, space, and the need for knowledge that provided so, so much for his family.  For me personally it was the nightly (and I mean nightly) discussions of everything from Archeology to zoo plankton.  It was his never ending struggle to put me on the right track.  It was his persistence that I achieve the most I could in my life.  It was he who provided the brightly burning light that I tried to follow my entire life.

My father, Mario, in conjunction with my loving mother could not have been better role models for me.  While I have developed a thick skin over the years because of my life decisions, I will always remember, respect, and honor my father.   I know my father’s faith will always be with him and in that end, he will always be comforted.  

While I can not show it sometimes, my role model, my provider, my life line, my father will always be missed in my life.  Dad I am sorry if I let you down sometimes.  I am sorry for my stubbornness.  I am sorry that I could not always tell you what I was feeling. I am sorry that sometimes we were far apart. 

I know you sacrficied for me. I owe everthing to you.  I will miss you dearly.

Love

James

“Sacrificing your happiness for the happiness of the one you love, is by far, the truest type of love.”

Posted by: Andy | March 2, 2009

Daughter’s Love

Friends & Family,
 
We want to thank all of you for the love and support you have shown our family over the last couple weeks. It truly makes a difference to hear from all of you which we relay to my father and provides a true source of comfort and strength during this extremely difficult time. It is so touching to see just what an impact he has had on so many of you.
 
I thought I would share a  a personal  letter I wrote to him a couple nights ago as a tribute to the person he is and the valiant fight he continues to fight.   
 
Please keep up the support and prayers! 
 
Marta & the Acuna Family
 
***************************************************************************************************************************************
Dad,
As I sit here and watch over you during the night, I wonder why this is all happening to such an amazing man, my father?
A man who is larger than life and an incredible force in all of our lives. A man who has been my role model and inspiration ever since I can remember.  You have guided my every step (and ocassional missteps) and have gone to incredible lengths to make sure we follow the right path in life. I can’t remember a time I brought you a problem you couldn’t solve or offer advice on pretty much every subject from solving an advanced calculus problem to fixing my leaky faucet to how to be a great parent to my children. You truly are my super-hero, my favorite rocket scientist and simply the best dad in the entire universe.
 
So I feel completely helpless as I watch this disease taking you away from us and try to disable your powers. I am angry that this cancer chose you. We are all so full of sadness and anger and try to find a reason why this happening. All of us, that is, but you. So once again you remain so strong and stoic telling us just the other day ”it’s just part of life” and saying you will live on through each of us and the grandchildren.  Showing your innate selflessness, the only real concerns you have are taking care of mom and making sure the grandchildren get a good education. Provide for them as you did for us which is no small feat .
 
In the wake of this incredible pain and sadness, I cling to hope that a miracle can bring you back to your old self ready to fight this battle again.  I realize the doctors have given us little hope but I look to the higher powers and the prayers of everyone who loves you to keep you with us. Through this entire battle, you have fought the myeloma ’Super Mario’ style not letting it get in the way of the things you love most – your family and your dedication to your career at NASA.  Now you owe it to Mom to at least retire and enjoy some time off!  And I want your grandkids to see first hand just how amazing their abuelo really is!
 
We have NOT given up on you Dad. We love and need you, so hang in there and fight!
 
Love,  Your ‘Martita’
Posted by: Andy | February 26, 2009

Gravely Ill

It is with great sadness that we report that our dad Mario is seriously ill and has been entered into the hospice program. On Saturday, Feb 14th we took him to Arundel Medical Center where he spent 10 days – half of which were in the critical care unit. He fell ill very quickly – within hours after having held a meeting at Goddard on Tuesday, Feb 10th.

Exhaustion, lethargy and mild confusion took over and by Saturday it was bad enough to warrant the visit to Arundel. Upon arrival we discovered he had a fever and his blood work looked very bad. His blood pressure was very low, his INR (measure how how thin your blood is) was off the charts, his calcium levels were very high and he had an irregular heartbeat. He had just begun a new chemotherapy regimen but had to be taken off due to his condition. He was just too weak to continue.

For 10 days in the hospital Mario received multiple treatments to bring his blood pressure up, his blood counts back to the normal range and his calcium down. Upon leaving the hospital on Tuesday, Feb 24th most of his levels were in the acceptable range, however the damage had been done by the rapid progression of the disease. Despite a valiant fight by Mario we came to realize that we were running out of time. The decision was made to take our dad home and place him in the hospice program. Our main goal is to provide comfort, peace and a loving family surrounding where he can spend his final days.

We met with his oncologist as a family today for a final consult – for understanding and closure. We asked about the possibility of recovery from this stage of the disease and were offered little hope. When pressed about how much time our dad might have left, we were told a matter of weeks. All patients are different of course and we are certainly clinging to the hope that a miracle could happen. Dad is just stubborn enough to hang around until the county re-asseses the house in 3 years.

Thank you all for your continued support and prayers. Fortunately for us, our parents raised a strong family to help lend support in trying and difficult times like these. That helps. We know our dad touched so many people’s lives and we should all strive to learn and lead from his example. He is an incredible father, husband and friend to us all. May God bless him and keep him.

The Acuna Children

Posted by: Barbara | January 26, 2009

Finally, an update!

I must apologize for not updating the blog for quite a few months. The last few months of 2008 were difficult for the Acunas. Unfortunately, I fell down about 12 steps outside my health club and broke my wrist. I also had a lot of bumps and bruises and my  neck was sore. I had PT for my neck and the cast on my wrist came off the day after Christmas. I am now undergoing 6 weeks of PT to improve my wrist rotation. Since I broke my right wrist and I am right-handed, writing and e-mailing were difficult. So, that is my excuse …….we tried to update friends and family in our Christmas letter.

NOW for an update……..Mario recently completed his 3rd round of chemo (cytoxan, thaliomide and dex). This round lasted 4 months and was quite aggressive. He endured the various side effects and was usually quite tired, but continued to work when he was able. Around Thanksgiving, he also developed a terrible cough which persisted for more than a month……..as well as a stomach virus. He lost some weight but seems to be regaining some of the lost pounds.  To add to everything else, he developed an irregular heartbeat and now we have added a cardiologist to our long list of doctors. He is on Coumadin and another med to control the heartbeat. Coumadin must be closely monitor.

Last Monday the oncologist performed a bone marrow biopsy to determine the percentage of cancer cells in the bone marrow. When this procedure was performed in the summer of 2008, the percentage of cancer cells was at 90 percent. The number came down to 20 percent this time…..great news! Now, the decision is what do we do next?  Since the cancer is aggressive, it will return and already the IGA number is increasing. So, Dr. Selonick is going to talk with Dr. Huff at Hopkins, who is an expert in the field of MM.  Stem cell transplant was mentioned but might be ruled out due to physical limitations and age. The desired age is under 70 and Mario will be 69 in March. It seems that each chemo session kills the less aggressive cells but is unable to kill the more aggressive cells. This is the case in a lot of cancers. That is what MM researchers are attempting to discover…find a way to get rid of ALL the cancer cells that will come back in time. They are studying combinations of meds and well as developing new meds to fight the disease.

We will meet with Dr. Selonick next week and will proceed from there. I promise to keep everyone better informed and thanks, as always, for continuing to give us the needed support that keeps us going. We appreciate all of your phone calls, e-mails, thoughts and prayers. HAPPY NEW YEAR TO ALL…here’s to health and happiness in 2009!

Posted by: Barbara | October 20, 2008

THE “ER”, AGAIN

Our lives have been very busy lately and it’s been difficult to keep up with the blog. Mario’s 3 sisters were here from Argentina and we’ve been visiting with our kids and grandchildren and doing some sightseeing. We also spent a few lovely days at the beach house in Ocean City. It was a very pleasant visit and took our minds off of doctors and pills for awhile.

A few Thursdays ago Mario developed a fever (again) after his last round of chemo. We called the doctor and were  told to have it checked out at the ER. So, at 8Pm we were off to the Anne Arundel Hospital ER to sit and wait to see the doctor and have tests and more tests. The tests showed that ANOTHER urinary infection had developed but this time they decided to release him. This was due in part to the Neulasta shot that was administered the day after his last chemo. The shot prevented the white blood cell count from going as low as last time. The doctor felt that his count was on the way back up and it could be treated with oral antibiotics at home. Before we left the hospital, they gave him an IV of antibiotics.  So, we returned home at 3:30AM……..Mario’s sisters were due in the next morning and we were relieved that Mario was able to greet them at the airport rather than the hospital.

The next day, we had an appointment with Dr. Selonick. He seemed to feel that the shot had done its job. We now have 2 more rounds of the aggressive chemo to endure but are enjoying a 2 week break. We don’t have any results from the 2nd round of chemo….yet.

Mario recently had a bone scan and it showed a few lesions in the skull whick will close up with the reduction of the IGA level. He has had a pain in his left leg near the hip bone which make walking any distance very difficult. Dr. Selonick has ordered another x-ray.

Thanks to ALL for your continued support………….

Posted by: Barbara | October 3, 2008

CHEMO, AGAIN

Mario underwent another round of chemo this week. We spent about 20 hours at the oncology office from Wednesday thru today. I think that I’m more exhausted than Mario. Thank goodness that Annapolis Mall is right across the street!

The GOOD NEWS is that Dr. Selonick stopped in to tell us that the protein count was cut in half after the first round of treatment. It went from 6,000 down to 3,000. We were most happy to hear that news!

Today Mario received a medication to strengthen his bones as well as a shot of Neulasta. Neulasta will increase the white blood cells in order to fight any infections. Neutropenia landed Mario in the hospital last time, but hopefully this shot will prevent that from happening this time.

Mario is feeling OK right now but it often takes several days to feel the effects of the chemo. Thanks to all who have been so supportive with your emails and phone calls. We are so fortunate to have a wonderful family and friends at this difficult time!

Posted by: Barbara | September 20, 2008

Neutropedic

Mario had his 2 full days of cheno on the 4th and 5th of September. They were 2 LONG days but we made it through. He was quite tired over that weekend and into the next week. He had a good appetite but spent most of the days resting or reading. We went to see Dr. Selonick, the new oncologist, on September 12th. At that time, Mario’s red and white blood cell counts were very low. He received an aranesp shot for the red cells. The white blood cell count was PANIC low. We were warned to watch for fever above 101.4 and call immediately if this should occur. Mario was a little chilled later in that day and after dinner we took his temperature. It was 102.6 so we called and were told to go to the ER immediately. We left dinner on the table and ran to Anne Arundel ER. Of course, we had to do all the admittance neccessities…..insurance, health info as well as blood tests and an x-ray. Then we were told to sit in the waiting room.  We immediately came back out into the hall to wait as we were surrounded by sick people in the waiting room. It didn’t seem to matter that Mario was neutropedic. We were finally shown to a room in the ER where they told us that the fever was due to a urinary infection. Mario was finally shown to his room at 3AM.

He was hooked up to an IV of antibiotics for the low white blood cell count. They also decided to give him a transfusion as he was having difficulty breathing due to low oxygen. He received 2 bags of blood over a period of 6 hours. By Thursday, his white blood count was heading up and his fever was gone. They kept him until Friday just to make sure and he was released yesterday afternoon. He is feeling much better with “new blood” and continues to take antibiotics for the infection. We will see Dr. Selonick on Tuesday to determine what the next step will be. He is due to have another treatment next week but it might be delayed???? We found out afterwards that there is a shot that can be given before the chemo to help with the low white blood count……..where was the shot when we needed it?  We are so grateful for the wonderful care that Mario received at Anne Arundel Medical Center……it should be a model for hospitals everywhere. Thanks, everyone, for your continued support!

Posted by: Barbara | September 6, 2008

Chemo Has Begun

Mario has completed 2 days of the new regimen of chemo. We were at the oncologist’s office all day Thursday and Friday. They split the 11 hours of treatment into 2 days so that it could be given in the office rather than a hospital. Most of those hours were spent hydrating the patient to prevent kidney damage.

Unfortunately, the calcium count is up but with medication went down 2 points. This indicates kidney damage. Mario’s red blood cell count is also down but he was given a shot of arenesp to help bring it up. Dr. Dushkin called us on Monday with that news so Mario had to go in for treatment. We are returning on Monday to do blood work and to check the counts. There is a possibility of a blood transfusion, if necessary. It seems that we are working against the tide as everything that we are trying to accomplish is being delayed by the treatment which lowers blood counts and can cause kidney damage. The treatment is part of the problem, if that makes any sense……….

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